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Michael D. Powers, author of Children with Autism, writes: "All parents experience
some feelings of guilt, incompetence, frustration, and tension. All brothers
and sisters are jealous, angry, and embarrassed many times over the course of
their childhoods. From time to time, most grandparents disagree with their children
about the best way to raise their grandchildren. And almost every married couple
has occasional (and not so occasional) arguments. We wouldn't be human if we
didn't experience these emotions...Having a child with autism does not change
these basic facts of family life...If you allow your child's autism and her
special needs to destroy your family or drive family members away, everyone
loses. But the biggest loser by far will be your child with autism. Therefore,
in setting your priorities, dividing your time, balancing everyone's needs,
and deciding just how much you can take, never allow your child's needs to or
your devotion to her to jeopardise your family life."
Confidence as a parent
For parents, it can be terrifying when faced with the unfamiliar behaviour
and unique demands of a child with ASD. Even parents who have had other 'normal'
children before can experience fear and self-doubt because they feel unprepared
for this type of parenting. However, it is extremely important to believe
in yourself as a parent.
For those who have had other children, it is useful to take a step back, and
consider one's previous successes. Remember that you are a loving and capable
parent. A child with autism may present a new challenge, but other parents haved
attested that skills which helped in raising 'normal' children apply to children
with ASD as well.
Another helpful method is to learn to recognise the multiple roles you play
daily for your child - an educator, nurse, doctor, therapist, advocate as well
as parent. Give yourself credit for the 'professional' roles you fill! (In fact,
some parents of children with ASD have gone even further to take up these roles
professionally, usually because of a lack of such experts in their town/ city.)
You can further help yourself by equipping yourself with knowledge of your
child's disorder and joining a local parents' support group. As you learn about
ASD and familiarise yourself with common problems and techniques to deal with
them, your confidence as a parent will naturally grow.
Siblings
A child's autism will definitely affect the way s/he relates with his/ her
siblings. In many ways, it can be a stressful yet rewarding, exasperating yet
enriching experience.
Here are some of the things that children said (about their autistic brother
or sister):
"He comes to me and he gives me a cuddle" (aged 10)
"I read books with him" (aged 11)
"I wish he could clear up his own mess" (aged 7)
"Sometimes in the car if he gets in a mood he sort of kicks me" (aged 9)
"She embarrasses me sometimes in front of my friends" (aged 11)
"With my brother you can't exactly have a normal conversation. He'd most likely
repeat what you say" (aged 11)
"People at school don't understand about it" (aged 11)
"If he's in a crying mood or something it's hard" (aged 8)
"I think he's special" (aged 11)
- excerpted from "Children with Autism - a booklet for brothers and sisters"
by Julie Davies
Older siblings of autistic children often feel very responsible for their little
brother or sister, and will help their parents out with taking care of him/
her. However, they may also face some disappointment at not being able to teach
their younger sibling to do things, tease them in fun, or just enjoy being admired
by a younger brother or sister.
Commonly, a younger 'normal' sibling may feel as if he/ she is the older one.
He/ she may feel the need to be especially responsible to take care of his/
her autistic sibling. At times, the younger child may enjoy 'being needed',
yet at times, resent having to take up this grown-up role. When other kids tease
their sibling, they may choose to stand up for their special sibling, then again,
they may not.
Teenagers feel the strong need to 'fit in' with the crowd. When 'normal' siblings
hit adolescence, they become conscious of even minute differences between themselves
and their peers. As a result, they may become embarrassed by their special sibling.
Although they still love their sibling, they may be torn by the desire for freedom
and urge to conform with the crowd. As such, they may come to resent all responsibilities
placed on them, which can include responsibilities for their sibling with autism.
Another concern would be their sibling's future, and its impact on their own,
such as whether they would have to support their sibling financially in the
future.
Child psychologists at the University of North Carolina, Rune Simeonsson and
Donald Bailey, Jr., suggest these three methods to help siblings of children
with challenges deal with their feelings:
1. Help your other children recognise and accept that their sibling's development
is, and will be, uneven. Despite growing tall and strong, s/he may still be
unable to communicate like others her age.
2. Help your children resolve any personal comparisons they are making with
their sibling who has autism, and help them see and accept differences between
all of the children in the family.
3. Help your children recognise their competence with their sibling with autism.
When siblings recognise that they are not controlled by the whims of someone
they may not understand, and further understand that they can make a positive
difference in their brother's or sister's life, then their real and perceived
sense of competence is enhanced.
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