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Alcoholism
National Council on Alcoholism and Drug Dependency
www.ncadd.org/
Alcoholics Anonymous
www.alcoholics-anonymous.org/
Alzheimer’s
Alzheimer’s Association
www.alz.org/
Alzheimer’s’ Disease Education and Referral Center
www.alzheimers.org/
Alzheimer’s Disease Education and Referral Center
www.biostat.wustl.edu/alzheimer/
Cancer
Colon
Colon Cancer Information Center
www.meds.com/mol/colon/index.html
Hereditary Colon Cancer Newsletter
www.mdacc.tmc.edu/~hcc/
Others
American Cancer Society
www.cancer.org/
National Cancer Institute Hereditary Cancer Information
cancernet.nci.nih.gov/p_genetics.html
Cancer Risk Assessment and Counseling
www.dnai.com/~ptkelly/
www.wnet.org/innovation/news/html/cancerg.html
Cystic Fibrosis
Cystic Fibrosis Foundation
www.cff.org/
Cystic Fibrosis Research, Inc.
www.cfri.org/
Cystic Fibrosis News and Resources
www.esiason.org/
Hemochromatosis
Hemochromatosis Society
americanhs.org
Hemochromatosis Society in England
www.trackint.com/ghsoc
Huntington’s Disease
Huntington’s Disease Society of America
neuro-www2.mgh.harvard.edu/hdsa/hdsamain.nclk
Huntington’s Disease information
www.hdfoundation.org/
Muscular Dystrophy
Muscular Dystrophy Association
www.mdausa.org/
Werner’s Syndrome
Disease information
www.stepstn.com/nord/rdb_sum/135.htm
International Registry of Werner’s Syndrome
www.stepstn.com/nord/org_sum/1546.htm
Turner’s Syndrome
Turner’s Syndrome Society of US
www.turner-syndrome-us.org/
The Turner Center--information, counseling, research
www.aaa.dk/turner/index.htm
Down Syndrome
Down Syndrome World Wide Web Page
www.nas.com/downsyn/
National Association for Down Syndrome
www..org/
National Down Syndrome Society
www.ndss.org/
Hemophilia
National Hemophilia Foundation
www.hemophilia.org/
World Federation of Hemophilia
www.wfh.org/
Sickle Cell Anemia
Parent’s Guide to Sickle Cell Disease
wellweb.com/INDEX/QSICKLE.HTM
World Wide Resources and links for Sickle Cell
www.emory.edu/PEDS/SICKLE/serv03.htm
General Links
Center for Inherited Disease Research:
www.cidr.jhmi.edu/
Alliance of Genetic Support Groups:
medhelp.org/geneticalliance/
Directory of National Genetic Support Groups:
medhlp.netusa.net/agsg/agsgsup.htm
Rare Genetic Diseases in Children:
mcrcr2.med.nyu.edu/murphp01/lysosome/hgd.htm
International Genetic Epidemiology Society:
darwin.cwru.edu/iges.html
Office of Rare Diseases; gentics information, counseling,
services links:
rarediseases.info.nih.gov/ord/genetics-info.html
Office of Rare Diseases:
rarediseases.info.nih.gov/ord/index.html
Coping with the impact of Genetic Disease, from
Swedish Hopital in Seattle, WA:
www.gene.com/ae/AE/AEC/CC/counseling_background.html
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